Gerard Quinn, Aisling de Paor, & Peter Blanck
2015
This book explores the different forms and potential uses of genetic testing. Drawing together leading experts in disability law, bioethics, health law and a range of related fields, it highlights the ethical and legal challenges arising as a result of emerging and rapidly advancing genetic science. On examining transatlantic perspectives on the matter, chapters in the book ask whether the US Genetic Information Nondiscrimination Act (GINA) is proving to be an effective tool in addressing the issue of genetic discrimination and alleviating fears of discrimination. The book also reviews what insights may be gained from GINA within employment and health insurance contexts, and asks how the UN Convention on the Rights of Persons with Disabilities (CRPD) may impact similar debates within the European Union. The book focuses particularly on the legislative and policy framework in the European Union, with an emphasis on the gaps in protection and the scope for specific legislative action in this area.
https://www.routledge.com/Genetic-Discrimination-Transatlantic-Perspectives-on-the-Case-for-a-European/Quinn-de-Paor-Blanck/p/book/9780415836937
Gerard Quinn, Aisling de Paor, Peter Blanck. (2015). Genetic Discrimination: Transatlantic Perspectives on the Case for a European Level Legal Response. Routledge Press.
Keywords: genetic discrimination, genetic testing, international disability rights